Chondrosarcoma – ah shit, bob's sick

Somebody asked me the other day, “why, with a limited amount of time, do I spend so much of it, online?”. I don’t remember what I answered at the time, but it wasn’t a well thought out answer. I’m sure I mumbled some stupid, wise-crack answer off …but

Later on that day, I started to think about it again and realized that since 1992-93, most of my life has been online. Hey, that’s going on sixteen plus years! During that time I’ve made friends all over the globe, did business around the world, and supported my family, and all with the same skill set.

My interest in computers started long before 1992, but that’s about when I realized just how powerful it was and began to integrate it into the business I was running at the time.

The simple concept that I could work, even at two or three in the morning, became a huge part of my life. I could write and communicate anytime I felt like it … what a wonderful thing. It wasn’t always the way it is now you know, there was a time when being connected online was very expensive. I remember getting online just long enough to send and receive emails, and then disconnecting. But it was still instant compared to traditional letter mailing.

Well, geez, the whole internet came in a phonebook-type book back then, which you could buy at any well supplied bookstore in those days. Of course it was out of date before it ever even hit the shelves, but it was enough to give you the idea of what people were doing. Can you imagine trying to print out every url today in book form?

Anyway, to make a long story short, here we are today
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Name the area(s) that have pain: Hip, Back, Right Leg, Body
Pain intensity: 4

Physical Symptoms:
Overall Morning Pain Level: (9:am) 1-10 / (2)
How Well Did You Sleep: 1-10 / (8 )    8hrs.
You Woke Up Feeling: 1-10 / (7 )

Overall Afternoon Pain Level: (Noon): 1-10 / ( 3)
What is your fatigue level: 1-10 / ( 5)
How is your appetite: 1-10 / ( 5)
How is your walking ability: 1-10 / (5 )

Overall Evening Pain Level: (7pm) 1-10 / (4 )
What is your fatigue level: 1-10 / (6 )
How is your appetite: 1-10 / ( 5)
How is my walking ability: 1-10 / ( 5)

Afternoon Nap:   none
Mental, Cognitive & Emotional:
How is my ability to think: 1-10 / ( 8) 
How anxious do I feel: 1-10 / (0 )
How depressed do I feel: 1-10 / ( 2)
How angry do I feel: 1-10 / (0 )
How irritable am I: 1-10 / (2 )
How happy am I: 1-10 / (7 )
How is my relationships with others affected: 1-10 / (1 )
How is my enjoyment of life affected: 1-10 / ( 2)

Exacerbating Symptoms:
Family/Home Stress Level: 1-10 / (0 )
Job stress level: 1-10 / (0 )
Other: 1-10 / (2 ) Blue Cross ( )
Current weather conditions: 32 degrees

Medications:
30mg morphine(s)  5:30pm. – 
10/650mg vicoden(s)  5pm -
Overall day : 7

For the youngsters and the young at heart (like me) … I wish to report that Santa made it to our house and left all kinds of goodies for everybody! The reindeer, ate all the celery and carrots we’d left on the table, and there were only a few cookie crumbs left from Santa himself whom drank milk and ate all the cookies I had left out.

We did have some hoof prints in the snow towards the front of the house, and one of the reindeer, I don’t know which one … but one of them left some, what looked like rasinettes, in our driveway!

Unfortunately, once again, we were sound asleep when they came and never even had a chance at seeing them. Maybe next year.

All said and done, we did have a decent holiday.

Today was kind of a down day, I was definitely not feeling up to par and we had a full house of guests … well, not quite guests, they were family, but still I didn’t have enough energy to participate. I am feeling a bit better at the moment which is why I’m writing this post.

Last week, I felt fine most of the week, especially while I was working … but over the weekend things rapidly went downhill and so far, remain there.

We did have a nice Holiday, and it was wonderful to have all the kids here at once (which is rare these days, as they are spread out all over the place). Both Sher’s boys were here, add Alberic, and you’ve got a full house. Both the older boys were very helpful in keeping Al busy most of the weekend … besides they all had new Holiday gifts to keep them occupied. It all worked out in the end.

I’m hoping that my energy returns tomorrow as I’d like to go to work again this coming week. I’m also hoping my energy holds out for the upcoming radio shows …. Yikes.

Another funny or odd thing is that, no matter how much I sleep, I just can’t get enough to feel rested … very strange thing. That’s what’s killing me (figuratively speaking), it’s so damn irregular. There seems to be just no knowing when you’ll take a dive into feeling ill. Extremely annoying and depressing to deal with … makes it impossible to plan anything.

I would’ve bet that last week that I was on my way to feeling consistently better, but once again I’ve been fooled into believing I had a handle on this dis-ease. You just can’t tell

Well, that’s it for today … maybe more tomorrow.

Name the area(s) that have pain: Hip, Back, Right Leg, Body
Pain intensity: 5

Physical Symptoms:
Overall Morning Pain Level: (9:am) 1-10 / (5)
How Well Did You Sleep: 1-10 / (3 )   3 hrs.
You Woke Up Feeling: 1-10 / (5 )

Overall Afternoon Pain Level: (Noon): 1-10 / (5 )
What is your fatigue level: 1-10 / ( 7)
How is your appetite: 1-10 / (3 )
How is your walking ability: 1-10 / (5 )

Overall Evening Pain Level: (7pm) 1-10 / (5 )
What is your fatigue level: 1-10 / (7 )
How is your appetite: 1-10 / (3 )
How is my walking ability: 1-10 / ( )

Afternoon Nap: 3 naps toal of 5 hours  

Mental, Cognitive & Emotional:
How is my ability to think: 1-10 / (7 ) 
How anxious do I feel: 1-10 / ( 0)
How depressed do I feel: 1-10 / ( 2)
How angry do I feel: 1-10 / ( 0)
How irritable am I: 1-10 / (2 )
How happy am I: 1-10 / ( 7)
How is my relationships with others affected: 1-10 / (1 )
How is my enjoyment of life affected: 1-10 / (2 )

Exacerbating Symptoms:
Family/Home Stress Level: 1-10 / (3 )
Job stress level: 1-10 / (0 )
Other: 1-10 / (0 ) (0 )
Current weather conditions: 35 degrees

Medications:
30mg morphine(s)  7pm. – 
10/650mg vicoden(s)  5pm – 7:30pm
Overall day : 6

Note: Christmas Day, slept till 10:30am! We’re expecting a house full of guests tomorrow, so we have a lot of preparation to do. Roast Turkey, Roast Shell of Beef and all the trimmings for both!

Name the area(s) that have pain: Hip, Back, Right Leg, Body
Pain intensity: 3

Physical Symptoms:
Overall Morning Pain Level: (9:am) 1-10 / (2 )
How Well Did You Sleep: 1-10 / (7)  8  hrs.
You Woke Up Feeling: 1-10 / (7)

Overall Afternoon Pain Level: (Noon): 1-10 / ( )
What is your fatigue level: 1-10 / ( )
How is your appetite: 1-10 / ( )
How is your walking ability: 1-10 / ( )

Overall Evening Pain Level: (7pm) 1-10 / ( )
What is your fatigue level: 1-10 / ( )
How is your appetite: 1-10 / ( )
How is my walking ability: 1-10 / ( )

Afternoon Nap:   hour

Mental, Cognitive & Emotional:
How is my ability to think: 1-10 / ( ) 
How anxious do I feel: 1-10 / ( )
How depressed do I feel: 1-10 / ( )
How angry do I feel: 1-10 / ( )
How irritable am I: 1-10 / ( )
How happy am I: 1-10 / ( )
How is my relationships with others affected: 1-10 / ( )
How is my enjoyment of life affected: 1-10 / ( )

Exacerbating Symptoms:
Family/Home Stress Level: 1-10 / ( )
Job stress level: 1-10 / ( )
Other: 1-10 / ( ) ( )
Current weather conditions: degrees

Medications:
30mg morphine(s)  7pm. – 
10/650mg vicoden(s)  5pm -
Overall day : 7