Chondrosarcoma – ah shit, bob's sick

To all those who have helped support Sher, Alberic and I this year.
HAPPY HOLIDAYS and THANK YOU TO ALL!

Bill N. – Florida
Howard and Sandy C. – Iowa
Rose M. – Uppsala, Sweden
Ray L. – New Hampshire
Bill A. – Vermont
Steve and Sara S. – New York
Harry M. – Vermont
Josh F. – SC
Sandra K. – Arizona
Herb and Teri M. – New Hampshire
Paul (Mac) T. and Family – Vermont
Lysz S. Florida
Louise P. – Vermont
Jason R. – New Hampshire
William and Rebecca B. – Vermont
Collen O. – New Hampshire
David L. – Vermont
Jack and Arlene M. – New Jersey
Fab W. – California
Kevin D. – Massachusettes
Lydia R. – Vermont
Rob S. – Florida
Alberic A. – Vermont
Sherian V. – London, England
Michael D. – Illinois
Peter D. – Vermont
Jane N. – Vermont
Dave and Linda J. – London, Canada
Tony E. – WOOL.fm
Mike C. – Vermont, New Jersey
Virginia G. – New Jersey
Thomas D. – Massachusettes
Dr. Gary C. – Vermont
James T. and Wife – Tennessee
Lydia R. – Vermont
Sandy D. – Vermont
Fab and Lynette W. – New Jersey
Deborah J. – Virginia
Jimmy A. – Vermont
Maryjane – Vermont
Jackie R. – New Hampshire
David P. – Massachusettes
Tom B. – Massachusettes
David S. – Maine
Mary Ann W. – Michigan
Bernie A. – New Hampshire
Dakota M. – USA
Bob and Sandy D. – Vermont
Christine and Dad S. – Colorado
Cathy T. – Massachusettes
Read more…

Note: It’s Christmas Eve. After a few days at work this week I needed a break. Basically , feeling well.

Name the area(s) that have pain: Hip, Back, Right Leg, Body
Pain intensity: 3

Physical Symptoms:
Overall Morning Pain Level: (9:am) 1-10 / (6 )
How Well Did You Sleep: 1-10 / ( 7)    hrs.
You Woke Up Feeling: 1-10 / (5 )

Overall Afternoon Pain Level: (Noon): 1-10 / (5 )
What is your fatigue level: 1-10 / (6 )
How is your appetite: 1-10 / (3 )
How is your walking ability: 1-10 / ( 5)

Overall Evening Pain Level: (7pm) 1-10 / (3 )
What is your fatigue level: 1-10 / (4 )
How is your appetite: 1-10 / (3 )
How is my walking ability: 1-10 / ( 5)

Afternoon Nap:   3 hours

Mental, Cognitive & Emotional:
How is my ability to think: 1-10 / (9 ) 
How anxious do I feel: 1-10 / (2 ) Christmas
How depressed do I feel: 1-10 / (0 )
How angry do I feel: 1-10 / ( )
How irritable am I: 1-10 / ( )
How happy am I: 1-10 / ( 9)
How is my relationships with others affected: 1-10 / (0 )
How is my enjoyment of life affected: 1-10 / (0 )

Exacerbating Symptoms:
Family/Home Stress Level: 1-10 / ( )
Job stress level: 1-10 / ( 0)
Other: 1-10 / ( 2) Holidays (5 Bluecross)
Current weather conditions: 35 degrees

Medications:
30mg morphine(s)  6pm. – 
10/650mg vicoden(s)  2@11am, 1@3pm, 1@9pm -
Overall day : 6

Note: After several good days (almost a week), I had a slight set back today. Simply over tired because I’ve kept long hours over the past few days. Hey, live and learn.

Name the area(s) that have pain: Hip, Back, Right Leg, Body
Pain intensity: 3

Physical Symptoms:
Overall Morning Pain Level: (9:am) 1-10 / (6 )
How Well Did You Sleep: 1-10 / (7 )    hrs.
You Woke Up Feeling: 1-10 / ( 7)

Overall Afternoon Pain Level: (Noon): 1-10 / (3 )
What is your fatigue level: 1-10 / (8 )
How is your appetite: 1-10 / (2 )
How is your walking ability: 1-10 / (5 )

Overall Evening Pain Level: (7pm) 1-10 / (5 )
What is your fatigue level: 1-10 / ( 7)
How is your appetite: 1-10 / (2 )
How is my walking ability: 1-10 / (5 )

Afternoon Nap:   none
Mental, Cognitive & Emotional:
How is my ability to think: 1-10 / ( 6-7) 
How anxious do I feel: 1-10 / ( 0)
How depressed do I feel: 1-10 / (2 )
How angry do I feel: 1-10 / ( 1)
How irritable am I: 1-10 / ( 0)
How happy am I: 1-10 / (7 )
How is my relationships with others affected: 1-10 / (2 )
How is my enjoyment of life affected: 1-10 / (2 )

Exacerbating Symptoms:
Family/Home Stress Level: 1-10 / (0 )
Job stress level: 1-10 / (0 )
Other: 1-10 / ( ) (3 ) Blue Cross again
Current weather conditions: 12 degrees

Medications:
30mg morphine(s)  6pm. – 
10/650mg vicoden(s)  5pm -
Overall day : 6

Another fine day at work … this is great! This is more like I thought recovery would be like. It’s been a real pleasure … to be feeling better these past days.

Funny thing … when I got to work today, there was a wonderful, anonymously donated, electric heater on my desk! I immediately thought of last night’s post J … whom ever brought that in … I thank you very much. It really helped a lot, because yesterday, I felt like I burnt a lot of precious energy just keeping warm. This is a new problem for me and I’m learning quickly to live with it. Again … I thank you very much J .

Had a great lunch today at the new little deli across the street from ARIS! OK … it’s a deli … but it was good heart warming cup of Lobster Bisque (yep, with real lobster in it), and a half of sandwich for five fifty! Five dollars and fifty cents that is. The soup was good and fresh, the sandwich was made on a fresh hearty wheat bread. A nice change.

Today we got a snail mail from Blue Cross admitting that they found an error in their accounting, and that Mass General Hospital is (IS) on their provider list (surprise!). That was a good thing. However, when we added the numbers up they didn’t come out quite right … so I have a feeling this isn’t over yet … but it’s getting better.

It was also a pleasure to see Bill A. today, I hadn’t seen him in a long time … gotta be four months or close to it. Bill has been a big … I should say huge, influence in positive attitude-ness for me. I need that around me. Everyone at ARIS has helped me stay positive … and that’s an important thing.

The truth of all this is, I don’t know how long “being well” is going to last, but as long as it does, I feel like I have to take advantage and get as much done as I can. That’s where the positive attitude comes into play. It takes a positive attitude to accomplish things and keeping it high-spirited puts me “on a roll” sort of speak.  So yeah, I appreciate that … a lot. I need it.

Well, that’s it for tonight. Again I have to try and re-schedule my system to new hours and get my butt out of bed earlier then it usually wants to.

That was never really a challenge before, but suddenly it seems it is …  what’s that about? J

Note: The radiation burns are healing well. Taking a bit longer then I expected, but moving steadily along. My second day at work was as good as the first.

Name the area(s) that have pain: Hip, Back, Right Leg.
Pain intensity: 3

Physical Symptoms:
Overall Morning Pain Level: (9:am) 1-10 / (3)
How Well Did You Sleep: 1-10 / (2)   3 hrs.
You Woke Up Feeling: 1-10 / (5 )

Overall Afternoon Pain Level: (Noon): 1-10 / (2)
What is your fatigue level: 1-10 / (7 )
How is your appetite: 1-10 / (4)
How is your walking ability: 1-10 / (6)

Overall Evening Pain Level: (7pm) 1-10 / (3)
What is your fatigue level: 1-10 / (7)
How is your appetite: 1-10 / (5)
How is my walking ability: 1-10 / (5)

Afternoon Nap:   hour

Mental, Cognitive & Emotional:
How is my ability to think: 1-10 / (9) 
How anxious do I feel: 1-10 / (0)
How depressed do I feel: 1-10 / (0)
How angry do I feel: 1-10 / (0)
How irritable am I: 1-10 / (0)
How happy am I: 1-10 / (9)
How is my relationships with others affected: 1-10 / (1)
How is my enjoyment of life affected: 1-10 / (1)

Exacerbating Symptoms:
Family/Home Stress Level: 1-10 / (0)
Job stress level: 1-10 / (0)
Other: 1-10 / (0) ( )
Current weather conditions: 12 degrees

Medications:
30mg morphine(s)  6pm. – 
10/650mg vicoden(s)  8pm -
Overall day : 8