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	<title>Chondrosarcoma - ah shit, bob&#039;s sick &#187; The View From Here</title>
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	<description>Life with Chondrosarcoma</description>
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		<title>Update:  Chondrosarcoma, Thursday, March 03, 2011</title>
		<link>http://www.ahshitbobssick.com/update-chondrosarcoma-thursday-march-03-2011/</link>
		<comments>http://www.ahshitbobssick.com/update-chondrosarcoma-thursday-march-03-2011/#comments</comments>
		<pubDate>Fri, 04 Mar 2011 03:16:16 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[Almost Daily Journal]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[cancer blog]]></category>
		<category><![CDATA[carotid artery]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1520</guid>
		<description><![CDATA[Today I went for the major eye exam. It took the better part of two hours to thoroughly, and I mean thoroughly check my eyes out. All reports came back fine, as a matter of fact, even my glasses prescription hasn&#8217;t changed in the past seven years. I had the exam done right in town [...]]]></description>
			<content:encoded><![CDATA[<p>Today I went for the major eye exam. It took the better part of two hours to thoroughly, and I mean thoroughly check my eyes out. All reports came back fine, as a matter of fact, even my glasses prescription hasn&#8217;t changed in the past seven years.</p>
<p>I had the exam done right in town (Springfield, VT) by Lane Eye Associates, and they were totally professional. I was really impressed to find a place of such high integrity right in town. I&#8217;ll definitely use them again if and when necessary. </p>
<p>No sign of broken pieces of plague, broken blood vessels, detached or torn retina, no nothing. Both eyes were declared in absolute perfect health &#8230; and honestly, they always have been. That&#8217;s one of the reasons this eye problem is so troubling.</p>
<p>The results didn&#8217;t really surprise me. I felt my eyes were in good shape before going &#8230; but I also wanted to eliminate them as a possible cause for the current situation. I solidly feel that I accomplished that today &#8230; that&#8217;s a good thing.</p>
<p>So where does that leave me? Well, I&#8217;m kind of back to square one in a sense.</p>
<p>Current plan is to redo the carotid artery scans to find out which set was actually correct and if that come back good, then there are several heart echo-grams to do, and last but not least a head/brain scan, although that seems to be a pretty remote concept at the moment.</p>
<p>There appears to also be the possibility of my being overly radiated, remote possibility again .. but certainly possible. Radiation exposure can cause optic nerve damage and I have had a lot of exposure in the past two years.</p>
<p>So, we&#8217;ll see &#8230; I may be heading back to Boston for some of these tests &#8230; only time will tell, and I don&#8217;t expect to hear a thing until Monday.</p>
<p>Seems like one of those &#8216;hurry up and wait deals&#8217;.</p>
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		<title>Well that&#8217;s a nice &#8220;how da ya do&#8221;:  Chondrosarcoma, Thursday, February 24, 2011</title>
		<link>http://www.ahshitbobssick.com/well-thats-a-nice-how-da-ya-do-chondrosarcoma-thursday-february-24-2011/</link>
		<comments>http://www.ahshitbobssick.com/well-thats-a-nice-how-da-ya-do-chondrosarcoma-thursday-february-24-2011/#comments</comments>
		<pubDate>Fri, 25 Feb 2011 04:31:56 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[The Hard Stuff]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[carotid artery]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1508</guid>
		<description><![CDATA[Today was the big day right? To find what was messing around with my vision. Well unfortunately that&#8217;s not what went down &#8230; confusion and chaos reigned and now I have two totally conflicting opinions. Not to go ballistic or political on the blog, but it&#8217;s truly no wonder our health system is so screwed [...]]]></description>
			<content:encoded><![CDATA[<p>Today was the big day right? To find what was messing around with my vision. Well unfortunately that&#8217;s not what went down &#8230; confusion and chaos reigned and now I have two totally conflicting opinions.  Not to go ballistic or political on the blog, but it&#8217;s truly no wonder our health system is so screwed up in this country.</p>
<p>This afternoon, around one o&#8217;clock we drove up to Dartmouth Medical Center, to the Department of Vascular Surgery for more advanced testing of my carotid arteries and to determine what should be done. If you remember yesterday&#8217;s post there were several different ways this could go, which were all acceptable to me and I was mentally and physically prepared to deal with whatever got presented as the logical way to go.</p>
<p>After the tests were finished, Dr. Eva M Rzucidlo met us in little consultation room, introduced herself, sat down and began by asking a bunch of general health questions, questions about the chondrosarcoma, and then proceeded to explain about the scans. As she started, I turned on my trusty digital voice recorder.</p>
<p> [Yes, I record all these important conversations and highly recommend you do too if the opportunity ever rises. It's amazing what you hear by listening a second and even third time. Even more amazing is what you yourself can say sometimes ... anyway, sometime tomorrow I'll put the recording in the audio section and you can listen for yourself.]</p>
<p>What came next was a pretty stunning statement &#8230; at least stunning to me because I was prepared to go through with whatever procedure they recommended including full blown surgery if that&#8217;s what it took to solve this and allow me to get on with my life. In general, I feel like I&#8217;ve almost lost two years dealing with this cancer &#8230; not that it&#8217;s solved or anything, but after the last trip to Boston I came out feeling like I could at least make a few plans for later down the road.  I&#8217;m ready to move on. I know I have cancer, I know what I have to do to deal with it, and have learned what I need to do on a daily basis to get by. I also know that things could change at anytime &#8230; but I try to keep that as a background thought. I don&#8217;t dwell on it.</p>
<p>Anyways, to my surprise the doc said that my carotid arteries (both left and right sides) were just fine! I said the tests at the other hospital (Springfield, Vt.) said they were at least seventy percent blocked, and that I was in need of doing this surgery immediately &#8230; and they said it with real sense of urgency &#8230; like do it now! She looked at me and said they interpreted the scans wrong &#8230; there&#8217;s no way your arteries are blocked even half that amount.</p>
<p><span id="more-1508"></span></p>
<p>At first, there was a sense of relief, and then a sense of &#8220;what the hell is going on here?&#8221;. Someone is either not telling me the truth, making a serious mistake or, I&#8217;m going crazy &#8230; and the last time I checked &#8230; I wasn&#8217;t crazy. She went on to explain other options like seeing another eye specialist to check for detached retina issues, brain scans (for possible brain tumors pushing against the optic nerve) &#8230; but was very clear that my arteries were not dangerously clogged.<br />
In the end, I asked her to recommend an eye specialist for a start and if nothing showed up there, I&#8217;d go for the full head scans (which I&#8217;ve been trying to avoid because of so much accumulated radiation built up in me from the proton and all the scans over the past year).</p>
<p>We left. We left partly frustrated, part angry, part confused and really pissed off. After spending the better part of the day there, we left with less information then we had when we&#8217;d arrived. It sort of put me back to &#8216;square one&#8217; after spending almost a whole week (and taking days off from work) to find out both places were barking up the wrong tree.</p>
<p>Meanwhile, I&#8217;m still having vision issues and I don&#8217;t know any more then when I walked in.</p>
<p>Now what? To be honest, I&#8217;ve lost faith in both hospitals. I have no way of knowing which is really making an incorrect diagnosis.  Do I go for a third opinion?</p>
<p>Unfortunately, this isn&#8217;t over yet. My current regiment is to take a few aspirin a day (stroke prevention) and ride out the vision stuff until I get a solid, confident sounding answer from someone. Maybe it&#8217;s back to Boston. I&#8217;m frustrated and angry at spending a week on this and still I have no clue as to what&#8217;s causing the problems.</p>
<p>I&#8217;ll put up the audio tomorrow so you hear it for yourself &#8230; it&#8217;s been a long day, my neck hurts from all the pushing and shoving, my back hurts from lying flat on those tables, it&#8217;s near midnight  and I&#8217;m really bummed with the results. What a waste of a week &#8230; more to come.</p>
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		<title>Where troubles melt like Lemon Drops:  Chondrosarcoma, Wednesday, February 24, 2011</title>
		<link>http://www.ahshitbobssick.com/where-troubles-melt-like-lemon-drops-chondrosarcoma-wednesday-february-24-2011/</link>
		<comments>http://www.ahshitbobssick.com/where-troubles-melt-like-lemon-drops-chondrosarcoma-wednesday-february-24-2011/#comments</comments>
		<pubDate>Thu, 24 Feb 2011 02:07:37 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[The Hard Stuff]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[carotid artery]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1506</guid>
		<description><![CDATA[While I had some spare time this evening, I thought I&#8217;d write a bit more about what&#8217;s going on. For those in tune to what&#8217;s going on &#8230; tomorrow afternoon I&#8217;m off the Dartmouth Medical Center for some more testing, and a meeting with Dr. Eva M Rzucidlo. The purpose is to determine exactly what [...]]]></description>
			<content:encoded><![CDATA[<p>While I had some spare time this evening, I thought I&#8217;d write a bit more about what&#8217;s going on.</p>
<p>For those in tune to what&#8217;s going on &#8230; tomorrow afternoon I&#8217;m off the Dartmouth Medical Center for some more testing, and a meeting with Dr. Eva M Rzucidlo. The purpose is to determine exactly what path to follow in repairing my carotid arteries (mainly on the right side).</p>
<p>She has an <a href=http://dms.dartmouth.edu/faculty/facultydb/view.php?uid=2676>impressive resume </a> and I full faith that she&#8217;s a pro. If you remember a ways back, Dartmouth Medical Center is the hospital I turned down before going for proton therapy in Boston. I simply didn&#8217;t like their plan for treating my chondrosarcoma. That being said, I do believe they&#8217;ll be the best in our area for this operation.</p>
<p>The story begins:</p>
<p>Last Thursday (February 17, 2011), while at work, I experienced a really weird thing with my right eye. It literally shut off for about twenty seconds.  I mean off, like you shut the lights off in the room, total darkness. The twenty seconds seemed like a long time at the time, but then as suddenly as it turned off, it turned back on! That was it for the day.</p>
<p>At the time, although I did think that was an odd thing to happen, I kind of brushed it off &#8230; well, not kind of &#8230; I did brush it off. There&#8217;s a logical reason for that too. There have been so many physical changes in my body this past year that I simply chalked it up to being on more thing I should mention at my next trip to Boston. At the time, it made sense &#8230; at least more sense then it does now. We all know hind-sight is always twenty-twenty.</p>
<p>While the sight was gone in my right eye, there was no pain, no dizziness, no head-ache, no nothing &#8230; I  just couldn&#8217;t see out of it. I say this because it was an important factor in the decision of my not to saying anything at the time.</p>
<p>The next day Friday, I was outside talking to my friend Harry M. when it happened again &#8230; but this time it was different sort of. Instead of getting total darkness (as dark, as dark can be), my vision sort of split. The top half was pure white and the bottom half was pure black &#8230; now how strange is that? Slowly, the bottom half started to come back and within about ten seconds I could see my friend from the chest down &#8230; really. It was very odd to say the least. I could clearly see his stomach and legs &#8230; but not his shoulders and head! Literally, my vision was chopped in have just like you&#8217;d cut a photograph in half. Again, after a few minutes my vision totally cleared up and went back to normal. I mentioned to Harry that I my eyes were acting up and explained a little bit of what was going on. We went back to work. Again, the rest of the day was uneventful.</p>
<p>Saturday came along and while at home talking with Sher it happened again. This time although the effects were a little different, the temporary blindness lasted a tad longer. At that time I told Sher about it and we decided we&#8217;d call the doc on Monday, even though it was a holiday.</p>
<p>Sunday it happened again, twice in fact. Now &#8230; I was thoroughly convinced something was wrong. I&#8217;d lost vision five times in the last few days. I started thinking about what might happen if it occurred while I was driving, or doing something like cutting stuff up for dinner. You know how thoughts race through your mind when something weird is going on &#8230; well this ranked as weirdness to me.</p>
<p>I started thinking back to try and remember any other times this may have happened, but couldn&#8217;t think of a thing. There were other strange visuals too. Once I experienced total darkness with just a pinhole of light coming through &#8230; like looking through a pin hole in a piece of paper. All darkness except for the pinhole which I could see through. Another time my vision turned totally dark purple! Yes, very weird.</p>
<p><span id="more-1506"></span></p>
<p>Monday, I went to see my primary care and told him about it. He checked my eyes with a large loupe for anything logically wrong but didn&#8217;t see anything. Knowing my history with cancer and tumors, his first thought was a possible brain tumor, but that we needed to clarify that thought with an eye specialist.</p>
<p>He left the room and started to make some calls. Sher was with him, and the phone got passed back and forth a few times between the eye specialist, Sher, and Doc &#8230; and finally was decided upon that I should have my carotid artery checked before anything.</p>
<p>The carotid artery is the big veins that run up the sides of your neck. They carry the blood to your brain &#8230; so yes, they&#8217;re incredibly important to supplying your brain with fresh blood. Without a clear blood flow, havoc can break out, there can be all sorts effects from slurred speech to blindness to all kind of numb feelings &#8230; basically, lack of blood to your brain is a stroke or mini-stroke &#8230; a very serious warning.</p>
<p>Now, I&#8217;ve been through a lot lately fighting the Chondrosarcoma and honestly not much has really frightened me up until this point. Cancer (at least my kind) doesn&#8217;t make you stupid or lose your mind &#8230; it&#8217;s a physical thing, and I always thought I could deal with any physical arrangement it could throw at me. Not that I wanted it, but that I could live full time in a wheelchair if I had too. I always thought, that as long as I could think clearly, I could make some kind of a living. Whether it was computer programming or sitting on the corner with a tin-can and my guitar &#8230; I could do something. With the cancer, whatever physical ailments I ended up with, I&#8217;d deal with it.</p>
<p>But your brain is a different thing. At least for me it is.  I get shivers down my spine just thinking about being stuck in a mind and body that couldn&#8217;t communicate with the outside world. It&#8217;s a frightening thought and something I would not want to deal with. </p>
<p>I say all this because I want you to be aware of these things. Don&#8217;t blow off symptoms you&#8217;re not sure about. It only takes a few hours to visit a doctor &#8230; and the results of not visiting one can last a lifetime &#8230;. so go.  I know for a lot of men, it&#8217;s a hard thing to do &#8230; you know, admit that you don&#8217;t know everything about everything. You know your body, and deep inside you usually know when something isn&#8217;t right, so don&#8217;t wait weeks and months to do something &#8230;. do it now.</p>
<p>Back on track. Now it&#8217;s Wednesday evening and tomorrow morning I go for a few tests to determine where we go from here. There are several directions that can be taken. One is a simple prescription for blood thinners, another is having a stent put in, and yet another is a surgical procedure that replaces the veins in your neck with one from somewhere else in your body (usually from the legs).</p>
<p>Hopefully, by this time tomorrow I&#8217;ll have answer, and maybe even checked into the hospital &#8230; we&#8217;ll see.</p>
<p>But as for you &#8230; I highly suggest you don&#8217;t fool around and wait if you experience anything like this. From what I understand and what I&#8217;ve read, I&#8217;m really lucky to get these little strokes as a warning sign that something was wrong. Not everyone is so lucky. Many simply stroke out and it&#8217;s too late or it&#8217;s a hell of a lot of work and rehab to get back to where you were.</p>
<p>More tomorrow.</p>
<p>&#8230; and NO, I&#8217;m not eating anymore cheeseburgers.</p>
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		<title>Oops Again! Chondrosarcoma, Wednesday, February 23, 2011</title>
		<link>http://www.ahshitbobssick.com/oops-again-chondrosarcoma-wednesday-february-23-2011/</link>
		<comments>http://www.ahshitbobssick.com/oops-again-chondrosarcoma-wednesday-february-23-2011/#comments</comments>
		<pubDate>Wed, 23 Feb 2011 14:53:15 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[The Hard Stuff]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[Dartmouth Medical Center]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1503</guid>
		<description><![CDATA[Oh boy, lucky me &#8230; there&#8217;s been a delay in more testing. Wednesday at two-thirty pm., I head up to Dartmouth for more testing. From that point, we&#8217;ll find out exactly what&#8217;s going on. We spoke with Dartmouth Medical this morning, and they implied that the sense of urgency wasn&#8217;t quite as intense as my [...]]]></description>
			<content:encoded><![CDATA[<p>Oh boy, lucky me &#8230; there&#8217;s been a delay in more testing. Wednesday at two-thirty pm., I head up to Dartmouth for more testing. From that point, we&#8217;ll find out exactly what&#8217;s going on. We spoke with Dartmouth Medical this morning, and they implied that the sense of urgency wasn&#8217;t quite as intense as my primary care doctor felt it was.</p>
<p>So that sort of leaves me hanging.  Even after tomorrow&#8217;s tests, it could be days before an actual admission.</p>
<p>I guess I&#8217;ll head off to work for a few days and see what happens.</p>
<p>This all started about a week ago when I started losing vision in my right eye. A few times a day I&#8217;d totally lose vision for about five minutes at a time, and then it&#8217;d return. These are what they call mini-strokes, and what caused the sense of urgency.</p>
<p>More to come &#8230;. lot&#8217;s more. I&#8217;m off to work for the day!</p>
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		<title>Oops! Surprise, surprise, surprise:  Chondrosarcoma, Tuesday, February 22, 2011</title>
		<link>http://www.ahshitbobssick.com/oops-surprise-surprise-surprise-chondrosarcoma-tuesday-february-22-2011/</link>
		<comments>http://www.ahshitbobssick.com/oops-surprise-surprise-surprise-chondrosarcoma-tuesday-february-22-2011/#comments</comments>
		<pubDate>Tue, 22 Feb 2011 21:57:26 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[Almost Daily Journal]]></category>
		<category><![CDATA[The Hard Stuff]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[cancer blog]]></category>
		<category><![CDATA[carotid artery]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>
		<category><![CDATA[rare cancers]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1499</guid>
		<description><![CDATA[Remember Gomer Pyle USMC? Well &#8230; I had my own surprise today. The story really begins a few days ago &#8230; well, maybe last Thursday or Friday when I started having some issues with my right eye. The issue was that I seemed to occasional loss vision in it &#8230; and I mean loss of [...]]]></description>
			<content:encoded><![CDATA[<p>Remember Gomer Pyle USMC? Well &#8230; I had my own surprise today. The story really begins a few days ago &#8230; well, maybe last Thursday or Friday when I started having some issues with my right eye. The issue was that I seemed to occasional loss vision in it &#8230; and I mean loss of vision. Either total blackness or total white light in my right eye.</p>
<p>Well, to make a long story short &#8230; I went off to see my primary care doctor Monday to ask about it. Once again my doc ordered the right tests for me and by the end of the day I knew I was in for a big one. Yep, tomorrow morning (Feb. 23, 2011) I go in for at least carotid artery surgery and who&#8217;s knows &#8230; could be a major bypass situation.</p>
<p>Gee whiz &#8230; and I thought things were just beginning to calm down a bit from the chondrosarcoma. Here we go again&#8230; nothing like a little excitement in life.</p>
<p>Hey, over the next few days &#8230; you can call or email Sher and help calm her down <img src='http://www.ahshitbobssick.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> .</p>
<p>If all goes well &#8230;. I&#8217;ll see you all in a few days.</p>
<p>To learn more, Google carotid artery surgery &#8230; you&#8217;ll get the drift!</p>
<p>BTW &#8230; I ordering a whole new body from Amazon as soon as I get back from Dartmouth. This stuff is starting to get old <img src='http://www.ahshitbobssick.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> .</p>
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		<title>The Wizard  Answers: Chondrosarcoma, Sunday, February 13, 2011</title>
		<link>http://www.ahshitbobssick.com/the-wizard-answers-chondrosarcoma-sunday-february-13-2011/</link>
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		<pubDate>Sun, 13 Feb 2011 20:46:15 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[cancer blog]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[proton therapy]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1490</guid>
		<description><![CDATA[Quick note about the trip to Boston: This past trip to Boston was in one sense a tough one, and in another sense one of the better trips I&#8217;ve had. Driving was absolutely awful, mainly caused by the amount of snow still in the roadways. I was surprised to see so much snow still on [...]]]></description>
			<content:encoded><![CDATA[<p>Quick note about the trip to Boston:</p>
<p>This past trip to Boston was in one sense a tough one, and in another sense one of the better trips I&#8217;ve had. Driving was absolutely awful, mainly caused by the amount of snow still in the roadways. I was surprised to see so much snow still on the roads. Getting out to Chelsea/Harvard Imaging was truly a trip through narrow, snow bound roads, and impatient morning drivers.</p>
<p>The good news is, that after the tests, scans, needles and everything else, there appears to be no change in the cancer. This is good news. Nothing is happening. Good enough to declare that I don&#8217;t have to go again until September &#8230; that alone is awesome.</p>
<p>These tests were different then what I&#8217;ve had in the past, different chemistry and different scanning machines.  At the time, the mix of concoctions put through my IV made me fell rather ill and  I thought it would be a lousy trip home, and was planning on feeling poorly for a few days, but to my surprise, they seemed to dissipate quicker then whatever they used in the past and by the time I had spoken with Doc Delaney, I was already beginning to recover.</p>
<p>This made the trip home much easier. Although I was really tired from driving and the long day, I wasn&#8217;t feeling nearly as poor, as in the past.</p>
<p>To put this trip in short form &#8230; it wasn&#8217;t bad. They did take some photographs for documentation and as always lot&#8217;s of questions, and it is one of the few times I&#8217;ve seen Doc smile and seem satisfied with what&#8217;s going on. I couldn&#8217;t call this trip, and Doc&#8217;s work,  any less then satisfying.</p>
<p>So while this Chondrosarcoma saga is far from over, I do feel that stabilization may be on the way. Yeah, I have my crappy days, but life is beginning to get &#8220;peppered&#8221; with a few good ones again now and then. And that my friend, feels awful good.</p>
<p>Now back to work!</p>
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		<title>We&#8217;re Off To See The Wizard: Chondrosarcoma, Wednesday, February 09, 2011</title>
		<link>http://www.ahshitbobssick.com/were-off-to-see-the-wizard-chondrosarcoma-wednesday-february-09-2011/</link>
		<comments>http://www.ahshitbobssick.com/were-off-to-see-the-wizard-chondrosarcoma-wednesday-february-09-2011/#comments</comments>
		<pubDate>Thu, 10 Feb 2011 02:01:09 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[Almost Daily Journal]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[Upcoming Appointments]]></category>
		<category><![CDATA[cancer blog]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>
		<category><![CDATA[proton therapy]]></category>
		<category><![CDATA[rare cancers]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1484</guid>
		<description><![CDATA[What&#8217;s been going on in life? Well, a lot has, in fact so much that I haven&#8217;t had time to keep up with it all. What else is new? Keeping up with things in life, not only requires a constant level of energy, but a high level of concentration and both of those items have [...]]]></description>
			<content:encoded><![CDATA[<p>What&#8217;s been going on in life?  Well, a lot has, in fact so much that I haven&#8217;t had time to keep up with it all. What else is new? </p>
<p>Keeping up with things in life, not only requires a constant level of energy, but a high level of concentration and both of those items have become as valuable a commodity, as just about anything could be. Oh, what I wouldn&#8217;t do for more energy.</p>
<p>You know those five hour energy drinks? &#8230; little tiny bottles of nasty tasting stuff that&#8217;s supposed to give you a boost through the afternoon, or give you &#8220;jump start&#8221; in the mornings? I could drink a dozen of those things right after waking up from a twelve hour sleep and go right back to bed. </p>
<p>My average day is actually rather simple &#8230; I&#8217;ve desperately tried to redesign my life&#8217;s days to intentionally reflect simplicity because of this energy problem, but unfortunately, I haven&#8217;t found that right combination that provides the increased desire to sleep and rest more often, and still accomplish the things in life that I need to do, in order to survive both financially and mentally. </p>
<p>In fact, the other day I said to Sher, that I thought maybe, at one time, long, long, time ago, that people might have hibernated like some animals do during winter. For the first time, I can honestly relate to this mode of living. Really! I mean, if I could pack myself away for the winter months, I&#8217;d do it.</p>
<p>There are several things that just seem to &#8216;use up&#8217;, absorb  or require lot&#8217;s of energy that I just can&#8217;t (or maybe not willing to) do without. I mean, like working. None of us can get by without working. How could you? Work not only has financial reward, which helps a lot, but also the sense of accomplishment that we all need. That&#8217;s something I&#8217;m not willing to lose or reduce. </p>
<p>Another thing is art (for a lack of a better word), I consider art to be a major part of a balanced  life. This includes everything from keeping sharp on my guitar playing, to writing, to creating 3-D computer art, and everything in between. If you think about it, your art time,  is often the only time you get to &#8220;work&#8221; for yourself, sort of speak. The Labors of Love.</p>
<p><center><a href=/images/posts/Catamaran-Render-2-9-2011.jpg><img src=/images/posts/sm-Catamaran-Render-2-9-2011.jpg border=0></a><br />Click Image For a Larger View</center></p>
<p>Yet another thing is children, children require lots of time and energy to grow. Ha! sounds like I&#8217;m talking about growing a plant or something &#8230; but it&#8217;s true. It&#8217;s a never ending thing. Often I blend several of these things together, in an effort to try and accomplish two things at once &#8230; like the old saying &#8216;killing two birds, with one stone&#8217;. Hence to the idea of teaching Al to play guitar. While getting it out of my system, it&#8217;s also teaching him. Last week I did it again with my computer. I showed him how a computer language can render a beautiful piece of art, simply by writing a file and sending it to a rendering engine to interpret it. We designed a Star Ship for fun.</p>
<p>For those that understand computer art, we used the POV-Ray engine (Persistence Of Vision, Point Of View), and a simple text file to create the ship below. While it&#8217;s not finished by any means, we do have a good start to it. For those interested you can read about the scientists that designed the render engine and language, why and what it&#8217;s all about, at POVRAY.org.</p>
<p><span id="more-1484"></span></p>
<p>Anyway, between work, art, raising children there is also the whole family thing, and the ability to provide all the things it needs to thrive &#8230; that&#8217;s a whole other venture in itself that requires lot&#8217;s of energy. Maintaining a home, food, clothes, etc etc., all part of maintaining life.</p>
<p>Of course many of us, do this almost mindlessly. You might say, &#8216;Ah, come on Bob, everybody does that stuff everyday &#8230; and then some&#8217; &#8230; and I&#8217;d have to agree with you. I always did, and still had time left to do more &#8230;. lot&#8217;s more.</p>
<p>But with the onslaught of cancer, I&#8217;ve had to make serious concessions as to which things were most important, and which I could let go off, and still feel like I was accomplishing what was needed to support and even grow my family. I have to assume that all cancer patients go through a similar situation, in fact, how could you not re-evaluate life&#8217;s purposes? I think it&#8217;d be a good thing to do now and then even without cancer. But your health forces that situation and all that goes along with it.</p>
<p>So how did I find time to write today? Well, tomorrow we&#8217;re off to see the wizard in Boston again. My last two visits have been thwarted by winters weather and it&#8217;s now time that I HAVE to go &#8230; no excuses.</p>
<p>You see, through-out all this time, the last year and half, I&#8217;ve never gotten a clear, solid answer on whether or not all this work that&#8217;s been done on me, has done any good. Now I can tell you, that the advancement of the cancer has certainly been hampered &#8230; even if the Doc can&#8217;t prove it in his tests yet, I can feel it in my body. What we don&#8217;t know and understand is that even though we&#8217;ve fought back with protons, chemicals and spirit (yes, I consider spirit one of the more powerful drugs), just how successful we&#8217;ve been. This is what we&#8217;re looking for now.</p>
<p>In layman&#8217;s terms &#8230; it&#8217;s minuscule traces of living, replicating cancer cells within the tumor, or anywhere for that matter. These cancer cells leave a trail of, traces of sugars, (if you were explaining this to a child you might say &#8216;it&#8217;s their poop&#8217;) as they move from place to another within the tumor, or if they decide to take up residence elsewhere in your system. These are the first stages to be seen if cancer is still active in your body.</p>
<p>In my case, it&#8217;s a little different though. Normally, this tumor would have been cut out, surgically removed, and then radiation treatment (and maybe chemo), around the surrounding area, would have assured (hopefully), that all the cells were killed. But because the nerve bundles, arteries and what-not that run down your spinal column became entwined in the tumor, conventional surgery would left me in tough shape. </p>
<p>However, with me the tumor was left in &#8230; and because of that, the risk of return could be higher &#8230; maybe. No one knows, and there is no historical data to go by. So we have to watch. The weird part is, that since the tumor still in me, there are millions of living cancer cells still floating around my system &#8230; what the proton therapy hopefully accomplished was that these cells are (hopefully) unable to replicate &#8230; and that is what they&#8217;re looking for.</p>
<p>Kind of simple, kind of complex &#8230;. but very difficult to judge or declare a success without a constant level of surveillance. It&#8217;s why I never get a &#8216;real&#8217; answer.</p>
<p>I ran a gamble by prolonging these visits (which wasn&#8217;t entirely my fault), but now it&#8217;s time to see the wizard and check out what&#8217;s going on.</p>
<p>So, I took most the day off (worked a little this morning), and prepared (emptied out) my system, and mind, for tomorrows visit, and will leave about five in the morning to make the drive. This also allowed me time to write this post!</p>
<p>So while I won&#8217;t return with a definitive answer tomorrow,  I will be able to re-sign my lease for another renewal of time, and adjust things accordingly. </p>
<p>Besides, I have a lot of personal things I want to finish or do yet: a list in no particular order.</p>
<p>The Faces of Cancer: (photo essay, not quite finished)</p>
<p>What&#8217;s Going on in Egypt and the Rest of the Middle East: (article)</p>
<p>How and Why to Grow Medical Marijuana: Best Medicines Made At Home. (almost finished pdf)</p>
<p>The Medical Garden: (almost finished), software for growing medical marijuana.</p>
<p>More Starships and Related Items: 3D renderings (with Alberic)</p>
<p>Why Ronald Regan Wasn&#8217;t a Great President: (article)</p>
<p>The Truth About Sex and Chondrosarcoma:</p>
<p>&#8230;. and the list goes on and on.</p>
<p>BTW &#8230; last week a friend (Harry M.)and I were having lunch in White River Junction, Vermont and in walked Governor Peter Schumlin, our new Governor of Vermont. At the time I was so surprised that I neglected to ask him about the advancement of Vermont&#8217;s Medical Marijuana laws and how impossible they are for most people to follow. Not in the sense of complication (they&#8217;re very simple and clear), but more about how the state is neglecting to supply more information about how folks that need to use it, can either purchase, grow or acquire it. Which is the reason behind my writing a PDF instructional pamphlet and matching software. Maybe next time &#8230; or maybe I&#8217;ll write him.</p>
<p>My goodness &#8230; so much to do, no time to be not feeling well &#8230; We&#8217;re Off To See The Wizard!</p>
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		<title>General Ramblings: Sunday, December 12, 2010</title>
		<link>http://www.ahshitbobssick.com/general-ramblings-sunday-december-12-2010/</link>
		<comments>http://www.ahshitbobssick.com/general-ramblings-sunday-december-12-2010/#comments</comments>
		<pubDate>Mon, 13 Dec 2010 01:53:32 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[Almost Daily Journal]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[observations of a cancer patient]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1468</guid>
		<description><![CDATA[I&#8217;m was sitting at my PC earlier today, staring at the monitor, thinking about what I should be doing instead of just sitting here. I could at least be writing something for the blog. With all the things going on in life you&#8217;d think it&#8217;d be easy to conger up something fun to write about. [...]]]></description>
			<content:encoded><![CDATA[<p>I&#8217;m was sitting at my PC  earlier today, staring at the monitor, thinking about what I should be doing instead of just sitting here. I could at least be writing something for the blog. With all the things going on in life you&#8217;d think it&#8217;d be easy to conger up something fun to write about. It&#8217;s that time of year between the holidays and while usually busy, I should be cheery and full of exciting things to say &#8230;</p>
<p>&#8230;. but not today.</p>
<p>Sometimes it&#8217;s a struggle to put, not only your thoughts in order, but then into words, and words that make credible sense.</p>
<p>It&#8217;s a cold, cloudy winter day here in New England,  grey with a heavy overcast. A light mix of snow and rain is falling, and as I glance out my window, I think it&#8217;s the kind of day that often brings a rafter of wild turkeys running through my backyard &#8230; but somehow,  it seems darker and colder then it ought to be, still be allowed to be called a day.</p>
<p>My bones are aching too, I&#8217;m not sure if it&#8217;s from the dreary kind of weather we&#8217;re experiencing or if it&#8217;s just par for the course of living with cancer.  But I guess that may be a déjà lu for those regular readers. Yes &#8230; it&#8217;s a real phrase &#8230; no kidding, like the more common term déjà vu which basically means &#8220;already seen&#8221;, déjà lu means something you&#8217;ve &#8220;already read&#8221;, or &#8220;read before&#8221;.  On days like this, I often think I&#8217;ve written enough &#8230; maybe too much at times.</p>
<p> While I sit here, I can hear the occasional car drive by outside with the sound of it&#8217;s tires working their way through the evening  slushy mixture, and I think that if it were all snow,  I would have never have heard it. I&#8217;ve always loved the way snow muffles the sounds of society &#8230; that, almost total silence.  Funny thing too, I&#8217;ve heard that sound everywhere I&#8217;ve lived (at least in the northern regions of our country), whether it was in the city, suburbs or rural areas. It always there &#8230;. yep, even in the middle of New York City the snow muffles the sounds outside in the streets. Even out in the woods the sounds of nature are silenced by snowfall.  Just one of those beautiful things in life I guess.<br />
 <span id="more-1468"></span><br />
There&#8217;s been a song&#8217;s lyrics pounding away at my mind all day, which often happens &#8230; sometimes it can be hours and hours before I can clear them &#8230; sometimes it can last for days. Today I kept going over and over the lyrics to an old Simon and Garfunkel song. As often happens as I get older, these songs take on new meanings or as in this case, I never realized or thought about the meaning to the song.</p>
<p>The song itself is mainly about the stages of life passing by, maybe getting older, but not necessarily &#8230;&#8230; although I&#8217;d guess that&#8217;s the most common way to look and think about it. Maybe the right way to say it is &#8220;the passage of time&#8221;.</p>
<p>The song,  written by Paul Simon and recorded by Simon &#038; Garfunkel in 1966, opens with the lines:</p>
<p>Time, time, time, see what&#8217;s become of me<br />
While I looked around<br />
For my possibilities<br />
I was so hard to please<br />
But look around, leaves are brown<br />
And the sky is a hazy shade of winter</p>
<p>It goes on into deep, poetically written lines about the &#8220;seasons of life&#8221;, the passage of time and how it can be over before you know it. The amazing thing about this type of song is that it was written (like so many of our other great song writers) when he was early twenties, barely old enough to really comprehend what life is about, let alone have such a deep understanding of it&#8217;s later workings.</p>
<p>Maybe that&#8217;s what brought me into such a somber mood for most of the day &#8230; I&#8217;m not really sure &#8230; but at the moment, I smell fresh baked chocolate chip cookies coming from the oven &#8230; and I&#8217;m going to have a few and see if they pick up my spirit &#8230; I bet they do, after-all they are best fresh out of the oven, still nice and warm,  with some ice cold milk!</p>
<p>Hang on to your hopes, my friend<br />
That&#8217;s an easy thing to say, but if your hope should pass away<br />
Just simply pretend<br />
That you can build them again<br />
Look around, the grass is high<br />
The fields are ripe, it&#8217;s the springtime of my life</p>
<p>Ahhh, seasons change with the scenery<br />
Weaving time in a tapestry<br />
Won&#8217;t you stop and remember me<br />
At any convenient time<br />
Funny how my memory slips while looking over manuscripts<br />
Of unpublished rhyme<br />
Drinking my vodka and lime</p>
<p>Ilook around, leaves are brown now<br />
And the sky is a hazy shade of winter</p>
<p>Look around, leaves are brown<br />
There&#8217;s a patch of snow on the ground&#8230;</p>
<p>Look around, leaves are brown<br />
There&#8217;s a patch of snow on the ground&#8230;</p>
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		<title>Please, please, please (Post about E-mail): Friday, December 03, 2010</title>
		<link>http://www.ahshitbobssick.com/please-please-please-post-about-e-mail-friday-december-03-2010/</link>
		<comments>http://www.ahshitbobssick.com/please-please-please-post-about-e-mail-friday-december-03-2010/#comments</comments>
		<pubDate>Sat, 04 Dec 2010 01:04:34 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[Almost Daily Journal]]></category>
		<category><![CDATA[The View From Here]]></category>
		<category><![CDATA[cancer blog]]></category>
		<category><![CDATA[Cancer options]]></category>
		<category><![CDATA[Chondrosarcoma]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1466</guid>
		<description><![CDATA[I&#8217;ve written this before, but every now and then I find it not only important, but necessary to repeat. Let me say &#8220;if you&#8217;ve sent me a personal email, especially within the last month or so, and I have not replied back to you &#8230; please resend it&#8221;. Chances are there&#8217;s a copy in your [...]]]></description>
			<content:encoded><![CDATA[<p>I&#8217;ve written this before, but every now and then I find it not only important, but necessary to repeat. Let me say &#8220;if you&#8217;ve sent me a personal email, especially within the last month or so, and I have not replied back to you &#8230; please resend it&#8221;. Chances are there&#8217;s a copy in your &#8220;sent bucket&#8221; of your email program.</p>
<p>While I don&#8217;t have tons of extra time &#8230; I do, very much enjoy reading and replying to all my email &#8230;. it&#8217;s important to me, personally. It has become an important part of my day. I say this because just today as I went to empty my junk mail folder, I saw an email that I had missed from (Judy G) &#8230;. but it was too late, it was gone before I had a chance to save and read it. So please &#8230; resend any recent correspondence if I haven&#8217;t already personally replied to you.</p>
<p>Since I&#8217;ve started this site, I have communicated by both email and telly, with some of the most interesting people I&#8217;ve ever met &#8230;. and I love that! It&#8217;s nice to hear from people, it&#8217;s supportive, informative, and rewarding for all.</p>
<p>Email is this amazing two-way street of conversation &#8230;. so many have helped me get through tough periods of this cancer, and I know I have helped others in return to understand what it&#8217;s like to be in this situation. Many have written powerful messages to me and we keep the correspondence going. I&#8217;ve heard many times that some &#8220;never knew&#8221; what thier parents or mate was going through, or the emotional experiences they went through.</p>
<p>So please, please, please &#8230; if I don&#8217;t personally reply in a few days &#8230; resend that email.</p>
<p>Thank you &#8230; I love you all.</p>
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		<title>You Say it&#8217;s your Birthday, it&#8217;s my birthday too, yeah: Tuesday, November 30, 2010</title>
		<link>http://www.ahshitbobssick.com/you-say-its-your-birthday-its-my-birthday-too-yeah-tuesday-november-30-2010/</link>
		<comments>http://www.ahshitbobssick.com/you-say-its-your-birthday-its-my-birthday-too-yeah-tuesday-november-30-2010/#comments</comments>
		<pubDate>Wed, 01 Dec 2010 03:27:45 +0000</pubDate>
		<dc:creator>Bob S</dc:creator>
				<category><![CDATA[Almost Daily Journal]]></category>
		<category><![CDATA[The Good Life]]></category>
		<category><![CDATA[The View From Here]]></category>

		<guid isPermaLink="false">http://www.ahshitbobssick.com/?p=1463</guid>
		<description><![CDATA[Just getting around to writing about our Thanksgiving weekend! and boy did we ever have a busy one at that. But let me start off by saying a few things about what I&#8217;m thankful for. For one, I&#8217;m thrilled to even be celebrating this day &#8230; there was a time last year when I wasn&#8217;t [...]]]></description>
			<content:encoded><![CDATA[<p>Just getting around to writing about our Thanksgiving weekend!  and boy did we ever have a busy one at that. But let me start off by saying a few things about what I&#8217;m thankful for. For one, I&#8217;m thrilled to even be celebrating this day &#8230; there was a time last year when I wasn&#8217;t sure that I&#8217;d be celebrating any more Thanksgivings or birthdays &#8230; so yes, I&#8217;m thankful for just being here with my family, friends and anyone reading this.</p>
<p>Last year at this time, my spirits were pretty darn low and with a grim outlook on the future, I have to admit that I was taking beating from all sides, both mentally and physically. But things have settled a bit since then, and thanks to the un-ending support from friends,  family and even strangers,  I&#8217;ve learned not only to do the &#8220;live one day a time&#8221; thing, but to also appreciate and enjoy  the time I do have and make the best of it&#8230; and that&#8217;s what I&#8217;m most thankful for.</p>
<p>Yeah, I know I&#8217;m not going to last forever &#8230; but then, who is?  It&#8217;s been a struggle at times to keep my mind-set straight and moving forward &#8230; but I think it&#8217;s an important point. Not only for me, but for those around me, and those watching. I want others in my situation to know they can do it too. That&#8217;s one of the reasons I wanted to continue to work, accomplish things, continue learning &#8230; keep pushing, and not give up.</p>
<p>It&#8217;s an important lesson for children too, they need to understand that when you give up, you lose.</p>
<p>It&#8217;s a dual weekend for us, Thursday was Thanksgiving and Sunday was my birthday, so of course we combined those into one, long weekend party. I was born on Thanksgiving Day in 1952 so it&#8217;s always been a  really special time at our house.</p>
<p>Thanksgiving Day (Thursday), Sher and I had a quiet day by ourselves, we made a nice dinner and relaxed a bit &#8230; armed with the full knowledge that the weekend was going to be the busy time for our house. Friday we did some of the cooking and preparation so that we could spend time with the kids while they were here &#8230; and that worked out well.</p>
<p><span id="more-1463"></span></p>
<p>Finally, Saturday arrived and it begin early and kept going &#8230; I&#8217;m sure you know how that is, even though we prepared ahead of time, it&#8217;s still hectic when it hits. My energy level held out reasonably well (even surprised myself), considering &#8230; we played games, cards, talked &#8230; all the things you do around the holiday table. The Wii got a work-out  as well &#8230; between the bowling, golf and all those type games, with a house full of kids &#8230;. I felt like I got a work-out too!</p>
<p>I&#8217;ve been teaching my little guy (Alberic) to play guitar &#8230; we even got a little time to practice. He just loves Beatles music and I&#8217;ve been trying to learn as many Beatles songs, as fast as I can, to help teach him, and I must add, with some reasonable success. He&#8217;s doing pretty good. He&#8217;s also been playing on the RockBand games, so between that, and then again on real guitars, he&#8217;s been learning fast! </p>
<p>A few hours after dinner we did the birthday celebration. Now I don&#8217;t want to sound crabby or anything &#8230; but to be honest, I never really got &#8220;into&#8221; my birthday most of my life &#8230; how could I? I was always working, or cooking Thanksgiving dinner for others &#8230; never really had the time or desire that matter, to enjoy my own day &#8230; but this year it felt different. I really did enjoy the day. So lovely to have family around, others sending email, text messages, phone calls &#8230; it really was a wonderful day for me. For the first time I can honestly say, that really enjoyed the day (not counting the time when I was a youngster of course) &#8230; and there&#8217;s a lot of folks to thank for that too.</p>
<p>I heard from a slew of people and it felt really good, a real spirit lifter to say the least. Sunday went the same way, busy and fun. By Monday, I was pretty burnt out, definitely out of energy and in need of a rest &#8230; but got up early, took Alberic to school and went off to work in the spirit of being thankful to still be able to work, and to have a job to go to.</p>
<p>So this is a thanks, a thanks to everyone &#8230; it was much appreciated by myself and my family for making it special Thanksgiving and a special birthday &#8230; we love you all.</p>
<p>I&#8217;d also like to give a special thanks to Judy G &#8230; you&#8217;ll never know how surprised we were, and how Alberic&#8217;s  &#8220;jaw&#8221; hit the ground when he saw it &#8230; it made the day for both of us!</p>
<p> &#8230; and for the dude that brought the GPS system &#8230; that saves me approximately 56 trips a week, up and down my stairs! &#8230; it&#8217;s literally a life saver <img src='http://www.ahshitbobssick.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> </p>
<p>Thank you all &#8230; and I truly hope your holiday was as fun as ours was.</p>
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